Janet is being used to trick people

When I turned on the computer this morning, I had the extremely painful experience of learning that soundbites from Janet’s story, taken from this blog, were being used by one of the many propaganda websites, that tries to discredit Dr. Burzynski.

We have many caring and compassionate and often brilliant practitioners of Orthodox Western Medicine among our friends. Some of them feel that when we stepped out of that medical monopoly, that we were making a terrible mistake. These friends are all excellent people and very sincere in their concern. I by no means wish to seem to discredit their knowledge and sincerity. Nor do I wish to not give credit to our friends who were trained in Orthodox Western Medicine, yet applauded our efforts to research ALL of the possible data.

Over many years of living, learning, and watching the world around us, Janet and I felt strongly that the monopoly known as Orthodox Western Medicine categorically demonized countless useful alternatives. For example, the Supreme Court of the United States agreed with this many years ago, when it ruled that the AMA needed to stop its malicious harassment of the technology of Chiropractic Medicine in the United States. They didn’t actually stop, but they had to be more careful with their malice.

I don’t believe that it is logical that ANY kind of technology can solve every problem. However, Janet and I have had many problems solved using Chiropractic Medicine over the years. This gave us quick, permanent results, without using any surgery or drugs.

This whole medical subject is unimaginably complicated, and you probably already have very strong opinions that I will not change here. One example, that I find very representative is:

Many years ago I was told that a scientist was researching what is now called ‘coenzyme Q 10,’ and the related ubiquinol. He discovered that it was extremely valuable in the treatment of heart disease and many other conditions. At the time, this scientist worked for a large pharmaceutical company and when his boss discovered what he was working on, he told him that he must stop working on that immediately.

The scientist said, “But, the positive benefits are unequivocal! This is a major help or even a cure for many conditions, yet it has no side effects.”

His boss said, “It is a common substance, that is found in virtually every living cell. All you are doing is supplementing it in people that are deficient.”

“We cannot patent a common substance. You need to on research things that we can patent and then sell, to make money on.”

Fortunately for all of us, the scientist quit and continued his research. Other conventional medical doctors saw the merits of this technology and joined the search. For example:

http://www.drlangsjoen.com/
http://www.prescription2000.com/Interview-Transcripts/2011-09-08-peter-langsjoen-chf-coenzyme-q10-transcript.html

Through a coincidence, one of my uncles met Dr. Langsjoen, shortly after my uncle had been abandoned by the conventional medical community. These orthodox doctors had told him that his heart condition was terminal and he did not have much time left. They had done everything in their power but he was not going to last very long. Kind of a, “Go home and die.” kind of message.

Happily, under Dr. Langsjoen’s care, my uncle’s health improved dramatically and he had many good years. Sadly, his heart problem did eventually kill him, but much later than originally predicted.

I know that I will be unlikely to change your previous opinions. I know that the Internet is a wonderful place to cherry pick data to support any opinion that one already holds. I suspect that we all do it. But, try hard to keep an open mind and to learn real facts.

Here’s a comment that I submitted to the malicious website. What do you want to bet that they refuse to post it?

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Janet E was the person that I love most in the world. We were good friends for about 40 years and soulmates for 32 years. Hopefully it will not surprise you that I am more than a little upset by someone using soundbites from Janet’s story to support this vitriolic, false, twisted propaganda piece, desperately trying to demonize any new research.

The author(s) falsely claims to support ‘science-based’ medicine. But they do not know the definition of science. Janet and I have always believed that real science must be a systematic enterprise, that absolutely must be based on honesty and not propaganda. Real Science must accurately combine the growing base of knowledge, in the form of testable explanations and predictions about the universe. And, it must be willing to revise that base of knowledge, when new real facts are learned.

Science, the real kind, works towards finding the best ways to treat disease. The methods with the highest cure rates, fewest side effects, and lowest cost. The medical establishment that pays for the afore mentioned propaganda piece, works for the most profitable way to treat disease. The medical establishment and its often well-meaning but, close minded followers, seem to think that surgery and pharmaceuticals are the only real tools to fight disease.

Janet and I disagree. I encourage you to do your own homework and learn about the literally countless other technologies that may be far superior to the limited alternatives given to you by your friendly neighborhood Doctor. Since your friendly neighborhood Doctor usually works for the medical monopoly, you will need to do the research yourself.

In case you say, “But, Janet died, and that proves their point.” What is not mentioned in the terrible propaganda piece on this website, is that Janet exhausted all conventional alternatives, before looking outside the medical monopoly. The Orthodox Medical doctors promised her that she would die very soon under their treatment. It was only then that we went to see Dr. Burzynski. The twisted lies in this piece may be written by a well-intentioned dupe, or a salaried propaganda writer.

Lying by twisting the facts is the format here. Like using the fact that Janet had a “severe case of Hand-Foot Syndrome” to support their claim that the medical monopoly is good and Burzynski is bad. But the reality is that the “severe case of Hand-Foot Syndrome” was caused by conventional chemotherapy drugs, the use of which was overseen by a conventional medical monopoly Doctor, who just happened to not give us any orientation about things to watch for as possible side effects from these medical monopoly drugs. Like not telling us how to avoid these well known side effects of the conventional medical monopoly drugs. This was NOT a fault of the Burzynski team. But of the Orthodox Medical Monopoly Doctor. Just one of the many deceptions in this article.

If I were lacking compassion and moral fiber, I could write many similar pieces about all of our many friends that ONLY had conventional treatment and died terrible deaths far sooner than their conventional doctors had predicted.

If you believe that spending a lot of money or dying are symptoms of stepping outside of conventional medicine, then you have no idea of the massive costs and often deadly results of using conventional medicine in many of these cancers.

The Hannah and Pete mentioned above are just some of the many people that the team at Dr. Burzynski’s clinic saved after the medical monopoly said they had weeks or months to live. But the author does not mention that, does he?

In our quest, Janet and I met many people who have completely cured their, ‘terminal cancers’ using Qi Gong, and Chinese medicine and many other technologies that are carefully demonized by the medical monopoly. Instead of dying within months, one woman that we know used Qi Gong, to cure herself completely. That was 30 years ago. As very healthy, living proof of the success of that method for her particular situation, she became an enthusiastic instructor, and a kind of Johnny Appleseed, spreading that knowledge around the globe to her best ability. The result being that she had saved the lives of many people that we met.

Freedom of speech is definitely a double edge sword. Any eight-year-old, or a paid propagandist, can put up a website and spout anything that they want to. I encourage you to not spend much time on this website but to go to honest ones. Your life or the life of a loved one may depend upon it.

Dave (the one referred to in this nightmarish propaganda piece)

We have accomplished much, and have a lot left to do.

First, let me say that I am doing quite well, although I’ve still not solved the, ‘no oil pressure problem’ on the engine.

Google says that today is the 50th anniversary of Dr. Martin Luther King’s, “I have a dream!” speech.

It might be a good time to reflect on how far some things have come. I was born in Houston Texas in 1943. Until the significant changes of the mid-60s, ‘Coloreds’ had separate bathrooms from ‘Whites’, separate water fountains. However, the water appeared to me to be just like the water ‘Whites’ drank. It was not colored at all.

They rode in the back of the bus, if there was a seat at all, because the dividing line on some buses was movable and sometimes their area was made artificially small just to annoy them. Ask Rosa Parks about it.

In my mind, probably the most disgusting thing of those days, where I lived, was that it was,’Open Season’ on anyone that you deemed to be ‘Colored’.

There were countless abuses of this. As I read what I’m writing, that that seems like an odd thing to say. The whole system was an abuse. Not only who you decided was subhuman.

What I mean to say is, that it was frequently used as justification for harming someone just because you could. It had more to do with skin color and hatred, than African ancestry. Lynchings and other brutality in the world that I knew in the South, was punctualized by frequent examples of, what I certainly hope is considered idiotic atrocity today.

Another big example of the, ‘How could so many have been so stupid.’ category, is how women were treated in America way back then. It seemed to me that the assumption was that they were supposed to be obedient housewives. Extremely subservient to their male masters. If they had some sort of defect and did not accept their role that was supposedly ordained from On High, they could be schoolteachers. But, in many areas, for many years, a schoolteacher could not possibly be married. They could be secretaries or nurses. But, that was about the extent of the action.

At the University of Washington, where I was finishing up my mechanical engineering degree, near the end of my term, the late 1960s, there was finally, actually one woman taking mechanical engineering. And she was quite the conversation piece. Whoever heard of such a thing? I’m sure she had a tough row to hoe.

A friend of ours was one of the pioneer women in the Merchant Marine industry in the early 1970s. She started out working on tugboats and ferries. As you might suspect she was no shrinking violet. But, even she almost reconsidered her perilous plight many times.

Even though the Alaska State Ferries had the perhaps premature wisdom to hire her. Some of her bosses would not allow her to come aboard their ship. They met her at the top of the gangway and sent her home.

Happily, eventually, she and a few other women that were trying to get into that industry, finally did win a class-action lawsuit, for lost wages.

Janet applied to get into that industry in late 1979. She was far from the 1st, but it was still early days. I’m quite sure that no one but by me understands how incredibly tough she was. But, even when she went back to work for NOAA for a few months in 1989/1990, she had some really tough times because she was ‘a woman in a man’s job.’

It is no secret that I still know quite a few people who think that women are inherently inferior at almost everything. Actually, I even know some that still think that the color of your skin indicate something. I hope their brain transplant comes through soon.

>Added 29 Aug:
>Upon reading this post, a dear friend told me:

>Dave, this past Monday August 26th was Women’s Equality Day, the anniversary of the 19th Amendment and women’s right to vote. That was in 1920. Now back to original post.

Also in today’s news I saw this interesting article about, new advances in how to detect ovarian cancer:

http://www.bbc.co.uk/news/health-23811705

The logical assumption is that if you can catch any kind of cancer sooner, it is easier to survive. Just like it is easier to put out a fire in the beginning. It is very possible that that will turn out to not be a very accurate analogy, or assumption. But it’s all we have at the moment. I am still of the opinion that we need to find out why the cancer is allowed to grow and to fix that, the ‘real cause’ of the problem. And then let the body heal and repair itself. Not requiring any surgery, or the deadly chemicals that are standard procedure now. But, we are long way from that day. And it may be a bad assumption also.

So, even though people with dark skin, or the wrong gender, and that would include gays and lesbians, still are a long way from equality. Even though cancer, of all kinds, is a very long way from being understood and the problem solved. We have come a long way just in my lifetime.

Hopefully, the further we come, the more the things that we HAVE accomplished, will fuel the fires to try to get us to accomplish even more.

Clearly those are by no means the only problems we have to deal with. They are probably not even among the most important problems that we have to deal with. But they certainly are extremely important, and any progress on any front is welcome.

Have a great day. And keep on chipping away at whatever problem you notice. Whether inside your external environment, or inside your own body and mind.

Dave

A friend is now Cancer Free!

Janet and several of our close friends died of their cancer. We met Hannah & Pete at the Burzynski Clinic in Houston early in Hannah’s treatment. The Doctors in the UK, assured her that her tumor was absolutely hopeless. I am SO glad to hear that Hannah is now cancer free.

http://www.teamhannah.com/blog/ see the 6/6/13 video

This was thanks to Dr. Burzynski and his staff. Yet he is still harassed and blocked by the Established Medical Mafia. Please do whatever you can to add a little honesty and honor to our abysmal American Medical Monopoly. Thousands of people are dying each year because of the greed of this vicious monopoly.

In a related link. Related in that the government does not want us to know what Big Business is doing to us. Have a look at:

I do not see what burning has to do with anything. Do you want to use petroleum and many mystery ingredients that are kept secret by government Fiat? Or would you like to use a product that tells you exactly what is in it, and just happens to be organic?

I have friends that used to work for Procter & Gamble. PG are by no means the only bad guys in this. They are just one snowflake in an avalanche.

Vote with your checkbook. Do not buy products that are afraid to tell you what you are buying.

David

There is a happy ending.

Let me start by saying that Janet is doing VERY well and the doctors and very happy with her recovery.

From what, you may ask.

Janet is in the University of Washington Hospital in Seattle. She developed a severe abdominal pain Monday afternoon , which they decided was probably due to a perforated colon. (They found gas bubbles in an X-ray.)

So they opened her up at 3 Tuesday morning and took a look. They didn’t find any more evidence of a leak, so they put in an ileostomy bag near where the small intestine joins the colon. This removes nearly all of the pressure on the colon and makes it both less likely to leak and easier for it to heal.

When she is done with chemo, this can then be reversed. Made to go away and put everything back to normal.

Today is Saturday, Mar 3, Janet continues to improve, take much longer walks in the halls, etc. But, while she wants to see everyone later, she is not comfortable with visitors in the hospital. Also, they are very, very concerned about communicable diseases in this part of the hospital. There are people in adjoining rooms with bone marrow transplants and other very high risks of infection, so, the less traffic the better for the whole floor.

Janet has been betting her “meals” through IV since Tuesday. She can start sipping clear liquids Sunday, Mar 4, and progress to soft food and then real food over several days. That implies to us that she will be in the hospital until mid week or later, but we really have no idea at this moment.

Janet’s regular oncologist is off for the weekend and today (Sat, Mar 3) we met Janet’s regular oncologist’s colleague who made clear to Janet that she is incredibly lucky.

You may be as surprised as we were to hear that. But, in Janet’s case, the perforation was noticed and correctly diagnosed, within about 4 hrs of occurring.
More often, it gets not correctly understood.

The following approach is much too common. “Must be a pulled muscle or a ‘stitch in the side’. Let’s watch it for a few days. If it is still bothering you, call and make an appointment.”

But, this time, they did an X ray of Janet’s chest & top of the abdomen that showed air in the abdomen that was not in the bowel, and did surgery about 11 hours after the (very small) initial leak. They also knew to get her on the correct antibiotics right away. It is extremely valuable to ‘nip in the bud’ with abdominal infections. Once they get going, they are very, very hard to stop.

Janet has never shown any sign of infection other than a slight fever in the first 2 hrs, that went away very quickly with her treatment.

So, she really was/is very lucky.

Dave & Janet

Janet’s Latest CA125 is in.

Her CA125 from Feb 16 was 40, down from 63 two weeks ago, and 624 at the worst on Nov 8, 2011. “Normal” on the kind of test that they use at SCCA is 0-35. (On some CA125 tests normal is 0-21. Sort of a Centigrade/Fahrenheit thing, that no one seems to be able to explain. But, all agree that lower is better.)

We’d been seeing 50% drops or better, so we were hoping for below 35, but probably next time, in 2 weeks. We think that the medications will stay the same through April 12, but there will be a PET/CT scan Mar 20 and at any time, the doctors may decide to change the program, based on the latest data. We assume that Janet will stay on the various medications for a time after getting “normal” readings of the PET/CT scan and the lab tests. The idea is to be sure to get any remaining “seed cancer cells” (our phrase).

Our current understanding is that the whole idea of cancer is that one cell mutates and usually begins uncontrolled reproduction AND stops the normal, programmed cell death (Apoptosis). In a healthy body cells are supposed to have “just the right number of kids” and then die on a certain schedule. Each part of the body has a schedule. Some are replaced and the older ones die every few weeks. But cancer cells may live many years and just lurk. Obviously we want them all gone.

So, just like you don’t stop the antibiotic the first day that you feel better, Janet will be on treatment for a while. However, when she does not need the Abraxane infusion, we believe, we hope that she can just take a bag of her oral medicines and we can fly to the boat (Turkey) for perhaps a couple of months.

We will see. There have been so many changes in plans in our lives of the last 2 years, that we have adopted a wait and see attitude.

Thanks for all of the support! We can feel all of the prayers, well wishes, positive thinking, etc. Please keep ’em coming.

Dave & Janet

Janet continues to improve

As of Sunday 29 Jan, Janet continues to improve. Her feet are still a little tender and she especially wants to ‘baby them’ so as not to have a relapse. But, she is not using the crutches at all and we ran errands Thursday. She got a new wig and had it trimmed a little, and had her head shaved.

That was not easy emotionally, but the Seattle Cancer Care Alliance (SCCA) offered it and we were over in Seattle on the right day, so she did. Mostly to stop the shedding. Other cancer survivors have commented on the shock of seeing a huge pile of hair in the shower drain and on their pillow and all over the house, etc. So, it is very logical, but surprisingly hard emotionally. She sure misses those curls.

The rain is taking a tiny break so we are actually going for a short walk. Her feet are that much better.

Dave & Janet

PS. The walk was 1.6 miles and her feet are still fine.

More great news about Hannah!

As I have said, while we were in Houston, we met many great people. Patients and staff and of course many friends that we know from the past.

But, Hannah & Pete were doing a blog and were often in the Infusion room when Janet & I were there. Pete & Dave spoke a lot about many things.

When we first met them, Hannah was not a Happy Camper. Headaches, nausea, dizziness, and more trauma. But I just checked their blog,
http://teamhannah.com/blog/
And found the great video dated
Team Hannah Weekly Blog 13-01-12
January 13, 2012

She is doing SO MUCH better than when we saw her last! Go Hannah!!! And Pete, too.

You may enjoy the many other videos and other features of their blog and related pages. We do. We hope that you will keep Janet, Dave, Hannah and Pete in your prayers, well wishes, positive thoughts and whatever you do best.

BTW, have a look at their video:
This is truly amazing – Laura’s Tumour is shrinking
January 12, 2012
See also http://www.hopeforlaurafund.co.uk/

Dave & Curly

What about us? Oh, we are snowed in at the Snohomish base. Janet has had some less than stellar days and nights, but the Clinic has cut back on one of the oral drugs for a few days to see if that helps.

But to be clear, it has never (yet at least) been awful. Several friends have had MUCH worse. But, we would say that this strong collection of drugs, does wear on her at times. But, things are good today.

Dave & Curly

Happy New Year & an Update on Janet

We will know more by the middle of the first week in Jan, but here is an update as of Dec 30. This is partly written by Dave & partly by Janet.

We are loving the ‘heat’ and sunny days here in Houston, TX. The American Cancer Society, arraigned for a one time, almost free, round trip ticket, Seattle to Houston, for both of us! When we arrived on Christmas Day it was cold, gray and drizzly. It looked just like the weather that we thought that we’d left back in Seattle. But, the next day the sun came out and it is has gotten to the mid 70s for several sunny days. Yippee! T shirt weather is our favorite!

Dec 27th we saw the ‘notorious’ Dr. Burzynski. We really like him. And his staff, too. They are using very clever technology and their large selection of ‘tools to fight cancer’ to improve their odds of success with Janet. The drugs that they use are all FDA approved, but often for other uses. They call this ‘off label’ use.

On Dec 27th we spent from 10:00 am to 5:30 pm at the clinic seeing doctors, nurses, a nutritionist, a financial adviser and now are much poorer financially but very optimistic regarding Janet’s treatment.

On the 28th they did a PET scan before beginning any treatment. The PET scan showed that many of the worrisome ‘spots’ on the CT scan, were NOT active tumors. They are either dead and not yet assimilated, or they may be scar tissue.

But, there are still some, small, suspicious areas and they are going to treat those.

In mid December 2011, we had a sample of Janet’s original tumor from December 2010, sent to Caris Life Sciences in Arizona for a detailed test of many factors, especially genetic testing. The idea is to learn, as exactly as possible, what kind of cancer Janet has.

http://www.carislifesciences.com/oncology-target-now

Doctors have known for some time that ovarian cancer, liver cancer, breast cancer, etc, are different and even though what began as ovarian cancer may now be in a different part of the body, success in treatment is much greater if you know where it started. There are many, many kinds of cancer and they do not all respond to the same treatment. This is part of the reason for the erratic results that most patients have. Even if you only talk about ovarian cancer, there are many kinds of that. Well, now it is becoming accepted that we can test for a much more precise genetic fingerprint of Janet’s exact cancer.

So, Dr. Burzynski had Caris find many of the genetic errors that allow Janet’s cancer to grow. For example, the BRCA1 and BRCA2 test that you hear about. They do not know how to test for ‘everything’ but they can look at the many ‘usual suspects.’

These are called the ‘targets’. Then they use the drugs that are know to ‘target’ those specific genetic defects. These drugs that target specific problems have much less collateral damage than the ‘hand grenade’ or ‘atomic bomb’ approach that are the many kinds of chemotherapy or radiation. At the Burzynski Clinic, they are also used in combination, custom designed for Janet. That way they can usually use even less of each drug and there are even fewer side effects.

The results from the analysis of Janet’s tumor that was removed last year shows which chemo drugs will not work well for her and which will. So, Janet has started taking several of those suggested drugs.

It is interesting that they start her on one new drug at a time. That way, if she has any side effect, they are more likely to know which drug is causing it. She is not having any troubles yet and does not expect to.

Also, these tumor samples are of the cancer as it was a year ago, and things may change over time, so the doctor has also taken a lot of blood samples and urine. These are tested for genetic and other markers of how Janet is doing NOW and by the first week of January all the results will be back and there will be an even more accurate plan for her treatment.

The results of Janet’s latest CA 125 haven’t come back yet. We are anxious to see what it is.

We always wondered what a nutritionist would say about our diet and we had a nice long talk with a really nice one here at the clinic. She specializes in cancer fighting diets that are compatible with the patient’s specific needs and treatment. She thought our diet was very good but had a few suggestions which we will incorporate into our diet. For example, Janet can’t take our multivitamin (due to the Folic Acid, selenium, & B12 in it) while she is on chemo and she is on the wagon again. But hey, we want this cancer gone so giving up wine for a while is not a problem at all.

We hope to know more by the 4th or 5th, so check back.

Happy New Year, Feliz Año Nuevo, Mutlu Yıllar, bon any nou, gelukkig nieuwjaar, godt nyttår, gott nytt år, szczęśliwego nowego roku, bonne année, ein gutes neues Jahr, and many more

Dave & Curly

FYI: To our friends who think that Janet ‘over did the perm’ that is her real hair. She has always wished for black, curly hair. Just like her Tony Doll.

Be careful what you wish for. <wink>

Wonderful News

930PM Tue

It is easy to see that Janet keeps getting better every few hours. Sitting in a chair for times, etc.

Jessie was better, but recently is not quite as good as a few hours before. Hopefully just a low spot in a generally upward roller coaster. This has happened before as her brain recovers and ‘tidys up the blood leak.’

Please note the improved wording two paragraphs below. Janet’s OR nurse clarified it about 0700 this Tuesday AM.

740PM Monday

We got to the hospital right on time. However, she was late going into surgery because the operating rooms were running late, but Janet is out and in recovery. It went SUPER well!!!

Janet’s surgeon came out and answered all questions. (The next bit should have read.) Her surgeon got all the bad stuff out and the chemo should continue to clean up any invisible ‘crumbs’ that might have been missed. The first two cycles of chemo had done an excellent job on even the large tumors that were there when the chemo started. Many that they found during surgery had shrunk. Some were just a lump of dead tissue and many visible on the CT scan had disappeared all together.

He did not have to remove any important bits. She will not need any intensive care, just a hospital room. She will probably be out of the hospital in about 4 days with no long-term side effects. Just the standard ‘get over having your insides opened up’.

In about a month, there will be 4 more cycles of chemo (12 treatments, but we are VERY happy!

Many thanks to everyone, emails, calls, prayers, love, good vibes, etc, especially some friends that came and ‘Dave sat’. (Waited with me in the operating room waiting room.)